Wednesday, March 7, 2007

More hallucinations, more fluid

I think I have writer's block tonight. I have about a thousand thoughts running through my head and I'm having trouble putting any of them into words. Here goes nothing... It was really hard seeing Dave yesterday (emotionally one of my worst days). It reminded me a lot of his first days in the ICU. He was not very lucid and for the first time he looked very small and very frail in the hospital bed. He's still having vivid sleep deprivation and drug-induced dreams and then has trouble separating his dreams from reality. He's had a couple different dreams where bad things are happening to the kids and then he's relieved when I assure him that the kids are accounted for and are ok. I usually feel very strong, but I couldn't stop crying when I walked out of his room yesterday.

Quite frankly, I just couldn't face going to the hospital first thing this morning, so I ran some errands and spent a bit of time at the library. I also bought an electric razor for Dave since the hair on his face was starting to outgrow the hair on his head. Thankfully, he was more tuned in to reality when I was there today. I brought some cards people had sent over the past couple days and he was happy to have me read those to him. I'll continue to bring him copies of the posts people leave on the blog as he always likes to hear those as well.

I had a long conversation with the surgeon this evening. The drain they inserted on Friday night seems to have done its job and the drainage has really slowed down. However (and this is a big however), there's another fairly sizable pocket of fluid which has accumulated in his abdomen and which is not being relieved by the new drain. They sent him back down to the intervention radiologist to insert yet another drain to get rid of that fluid. Unfortunately, they were not able to get at the bulk of the fluid. The way the surgeon described it to ye ol' layperson after I gave him the "huh, what does that mean?" was to liken the fluid pocket to the segments of a grapefruit. They could perforate one segment and drain it, but the other segments contain discreet pockets of fluid and it's just not practical (not to mention that it was painful for Dave) for them to drain each one individually. The options now are to either wait and see if his body will reabsorb the fluid over time or go back in to his abdomen surgically and drain the whole area. At this point, because his white blood cel count has dropped and his fever is down, leaving them less concerned about possible infection in that fluid, they are taking the conservative "wait and see" approach.

We embarked on this whole adventure with an admittedly aggressive surgeon to aggressively kick the ass of an aggressive cancer, but at this point I'm feeling pretty good with conservative.

6 comments:

Anonymous said...

Shannon,

I wish so much that I could take away all of the hurt that is in your guys lives right now. Dave's physical pain, and the pain in your heart that comes with seeing someone you love in such a fragile state. It all seems so cruel and so unfair.

You have hundreds of people all over praying for you and Dave. I don't know if prayer is part of your life, or belief in God for that matter. But God does love both of you so very much and is walking with you guys every step of the way. It might not seem like it, but he's there. And just like a Mother or Father who is pained when one of their children is hurting, God feels your pain.

I hope you don't think I'm lecturing or judging, because that is not my intention. From the deepest part of my heart I just want you to know that God loves both of you so much, in the same way you guys love Ian, Miles, and Molly.

Reach out to him, he longs to hold you in his arms. Call out to him, he longs to hear your cry. Lean on him, he wants to hold you up.

I love both of you so much and not a day goes by that I don't think of both you.

Give Dave a kiss from me
Mike

r said...

Shannon and David,
Every day I check to see how things are... and the last two days I've been a little scared to do so...

You are going to laugh at me, but my mom says she knows David is going to make it through. She knows things... really. Usually it's just where my damn keys went, but she gets... you know... feelings. She's said it all along, since I first told her about what was happening.

She's thinking about you both, as am I.

I wish there was some way I could take a little of your worry off of you Shannon, or just a cupful or two of your pain David, but all I can do is keep you in my heart and my thoughts.

I do.
There is sunshine ahead.

Anonymous said...

I think a concervative approach sounds very reasonable, Shannon, particularly if there is no infection concern... The main thing is hopefully that the leaking has slowed down/stopped - the body will absorb fluid that has accumulated over time, but it can sometimes be a slow process... trying to mobilize him will help somewhat (and stave off additional problems) - keep him upright and walking (at his own pace) as much as possible. Harder with the gowning and gloving, I know, but well worth the hassle (if the sun comes out again, see if there's a place he can sit a little outside - a little UV light hitting the retinas and some fresh air does wonders for the spirits...) Anything and everything to help with his (and your!!!) spirits and sanity is worth it! I thought Dave looked a little better today - I hope he's turning a corner with this very soon...

all my love - jc

Anonymous said...

Shannon and Dave:
Glad to hear the infection is on its way out. The loculated fluid and multiple catheters is unfortunate, but it is exactly what happened to me...along with the staph infection. Waiting it out is best and far better than more surgery. It took awhile for mine to heal up, but it did. Hang in there.
Paul.

Anonymous said...

Hang in there, both of you. Two steps forward, one step back....just be ready for the next two forward!

I was once told a story about a King in a thriving kingdom who tried to get a wise man to come be his advisor. The wise man continually refused. Finally the King convinced him to at least give him some advice. The wise man gave him a ring with a message inside and told him to only open it in the direst of circumstances when it looked like there was no way out. The King laughed, thinking there was no way that would happen. A few years later, the King faced a revolution and gradually the rebels took over the kingdom. The King and his loyal troops were forced to flee. They were pursued and captured or killed one by one until only the King remained on a mountain ledge with the rebels closing in. In desperation he opened the ring and read the message, which was "This too shall pass" It may seem silly but there is so much truth in those simple words. I have thought of this story many times...and you know,it is always true. Wait a little and the sun will shine again.

We appreciate so much your taking the time to write this blog. Know that we send love all the time your way and we wish we could do more. Please ask us if you think of something we could do that would help.

Much love,
Duane and Navina

PS Duane says More inspirational pep talks available by phone from blind man whenever desired!

Anonymous said...

Good post.